Living in UV
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Living in UV

The family of a four-year-old boy say they are desperately trying to prevent their son from living his life under ultraviolet lights.

Ismail Ali, from Luton, has a rare liver disease called a Crigler-Najjar, otherwise known as "lifetime jaundice". It's a condition which affects only 100 people across the world.

To treat his condition, Ismail has to sit on a bed lit by UV phototherapy lights for 20 hours a day, which he has been doing since he was one-week-old.

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