Sam Brown and his mother
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Sam Brown, 6 from Otley, hands in a petition about drug costs.

A six-year-old boy with a rare disease has taken a petition to Downing Street calling for the NHS to pay for a life-extending drug.

Sam Brown, from Otley, has Morquio a condition that stops his bones growing properly.

The drug he needs costs £500 pounds a day but Sam's funding is to cease in May, so the family made the lobbying visit.