Amelia Wood is not expected to live beyond her eighth birthday
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Fundraising for Batten rare disease girl Amelia Wood

A Nottinghamshire grandmother is raising money for a sensory room for her granddaughter, who has a disease so rare it only affects around 200 children in the UK.

Pauline Davies said she wants to make Amelia Wood's life easier in her last few years.

Amelia's parents Shelley Weir and Sean Wood said their daughter's Late Infantile Batten Disease means she is gradually losing her sight, and soon would not be able to walk, talk, or eat by herself.

  • 12 Nov 2012