Call for national lung transplant system
10 March 2014 Last updated at 07:46 GMT
The way the transplant system operates for patients who need new lungs is a "scandal" and needs to change, according to the Cystic Fibrosis Trust.
At present there is no national system in place for getting lungs to those most in need. Instead, the organs go to the closest regional transplant centre.
Lisa Hampele reports.