Living with EB
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How Swindon woman copes with rare skin condition

A Swindon woman, who suffers from a debilitating and life-altering rare skin condition, says she doesn't "let it get in the way" of what she wants to do.

Heather Skerry has recessive dystrophic epidermolysis bullosa (EB), which means her 'butterfly skin' blisters and tears at the slightest friction.

It also affects her internal skin, which means her mouth and throat blister.

About 5,000 people in the UK live with EB.

The 26-year-old, who has had no skin on her back for 19 years, is hoping to raise awareness for the EB charity Debra.

  • 05 Jun 2017