Ehlers-Danlos syndrome

Woman unable to lift head gets surgery lifeline

A woman from Northumberland who has a rare condition called Ehlers-Danlos Syndrome has undergone a life saving operation in Spain.

Liv Woodburn, 35, from Embleton, has the condition which prevents her from walking and supporting the weight of her head.

Earlier this month she was flown by air ambulance from Newcastle to Barcelona and underwent specialist surgery.

Meanwhile, family and friends and her husband Gary are still trying to hit a fundraising target of £100,000 to cover medical bills.

Liv Woodburn
Ehlers-Danlos Syndrome: Couple need to raise £100,000
Liv Woodburn and her husband need to travel to Spain to receive specialist treatment.
A wall paper print of a dirty plug hole

Niamh Hughes

BBC Ouch

When a disabled artist tried to show her family how messy they were by taking photographs of their clutter, they mistakenly thought she had created a new piece of artwork.

Read more

Trust me, I’m a disabled doctor

Limb loss, dyslexia and mental health difficulties - and that's just the medical staff.
An A&E consultant, a psychiatrist, and two junior doctors swap notes on being disabled in the medical profession. 

Emergency medicine consultant, Dr Kieran McKiernan, speaks on the perils of self-diagnosis. He lost his leg after failing to treat a blister which became a 5cm-sq hole in his foot. 

Trainee GP, Dr Hannah Barham-Brown's wheelchair means she's regularly mistaken for a patient, while Dr Emily Burns spotted one patient's 'diagnosis' of Query Malingering - a euphemism for faking it - was actually Ehlers Danlos syndrome, a rare condition she has herself. 

Dr Caroline Walker says she hasn't got to go far to find doctors who, like her, have mental health difficulties. 

The foursome chat about the ups and down of the medical profession, the ambition to embrace diversity and how working less than full-time hours could be beneficial to all junior doctors. 

Produced by Emma Tracey.

Subscribe now to BBC Ouch in BBC Sounds or ask for us on your smart speaker by saying "play Ouch disability talk from the BBC".
Sussex woman takes first footsteps after surgery
Karen Scott has a rare disorder which stopped her from walking and supporting the weight of her own head.